21 May A clinical trial wants your DNA – what should you do?
By Martin Schiller, The Conversation
On May 6, the “All of Us” study started enrolling participants. This national study will be one of the largest ever examining the connection between genetics, behavior and medical outcomes, with a goal of 1 million or more participants. Anyone over the age of 18 in the U.S. can join.
As a researcher who studies personalized medicine, I believe it’s important for Americans to be able to make an informed decisions in their quest for cutting-edge health care, but it does raise important questions over privacy. Given modern concerns about data security, I see positives and negatives to participating in trials like All of Us.
You may question how this will benefit you and potentially compromise your privacy. Your skepticism is warranted and worthy of investigation to help you make the correct decision. Read more …