30 Apr NIH ‘All of Us’ Research Program symposium to highlight progress and next steps in building largest, most diverse health research effort ever undertaken

Posted at 12:00h in All of Us by

What

The All of Us Research Program at the National Institutes of Health is hosting a special symposium, “From Data to Discoveries: Creating a Research Program for All of Us.” Marking 1 year from the program’s national launch, speakers will identify the building blocks of a meaningful research program, including an engaged and diverse participant community, and forecast the program’s scientific possibilities. Also at the event, the program will introduce the All of Us Data Browser, an interactive tool available to the public that provides summary statistics from the program’s growing database, with information from participants’ surveys, physical measurements, and electronic health records.

Agenda (PDF)

Who

Speakers include:

  • Francis S. Collins, M.D., Ph.D., Director, National Institutes of Health
  • Eric Dishman, Director, All of Us Research Program
  • Gary H. Gibbons, M.D., Director, National Heart, Lung, and Blood Institute
  • Nora D. Volkow, M.D., Director, National Institute on Drug Abuse

with

  • Elizabeth Cohn, Ph.D., R.N., Rudin Professor of Nursing, Hunter-Bellevue School of Nursing, City University of New York
  • David Glazer, Engineering Director, Verily
  • Deven McGraw, J.D., General Counsel and Chief Regulatory Officer, Ciitizen
  • Ana Pavón, Program Coordinator, PASOs-Midlands
  • Robert A. Winn, M.D., Associate Vice Chancellor for Community Based Practice; Director, University of Illinois Cancer Center; and Professor of Medicine, University of Illinois at Chicago

 

When

Monday, May 6, 2019; 9:00­–10:30 a.m. CDT

Where

The event will be streamed via NIH Videocast and Facebook Live.

Background

For far too long, biomedical research has been based on a small subset of the United States population, leading to prevention and treatment methods that are often one-size-fits-all. To address this issue, the All of Us Research Program is working to build a cohort of one million or more participant partners that reflects the diversity of the United States. The program has a special focus on engaging communities that have been historically underrepresented in research, including racial and ethnic minorities, sexual and gender minorities, older adults, people with disabilities and others. Program participants provide data that will be broadly accessible to researchers for a wide range of studies. By taking into account individual differences, researchers will uncover paths toward delivering precision medicine — or individualized prevention, treatment, and care—for all of us.