All of Us Research Workbench open for user feedback

The National Law Review

The National Institutes of Health recently opened its data platform for user feedback of its “All of Us Researcher Workbench.”  Researchers are now able to use the initial datasets obtained from nearly 350,000 participants in the All of Us research program and the tools in the All of Us studies.

Initially branded as the “Precision Medicine Initiative®” Cohort Program, “All of Us” will be the largest volunteer health and medical research program on precision medicine in the United States. As part of this health initiative, “All of Us is building a diverse database that can inform thousands of studies on a variety of health conditions.” The All of Us program is working towards:

  • Identifying risk factors for certain diseases;
  • Determining which treatments work best for people of different backgrounds;
  • Connecting people with the right clinical studies; and
  • Learning how technologies can assist health and wellness

 

The NIH also announced that they have adopted a “data passport” model to make the data accessible.  After several preliminary steps (registration, agreeing to certain rules, and program training) users will have access to use the All of Us data for a wide range of studies. Read more …